Thursday April 28, 2022

Summer Seminars - July 2022

This July you can look forward to a month of content from Myhre experts as they update you on the latest research and clinical findings on Myhre syndrome.

We have brand new topics including endocrine, brain & spine imaging, dermatology and psychiatry. Our virtual Summer Seminars will be available on demand and with multi-language captions, with new content dropping every Saturday in July.

All talks will be pre-recorded so if you have a question for a Myhre doctor or specialist please submit your questions by 30 April 2022 to iwhite@myhresyndrome.org

Myhre Clinic - Research Update

There is not only a need to understand the symptoms and how the symptoms present (the pathology of the disease as well as the phenotype or physical appearance of the disease), but there is also a need to develop a specialized treatment plan, consisting of a cure or therapeutic. All of these avenues of research are important to help improve the lives of people with Myhre syndrome.

Read the article to find out how your funding is making an impact.

Move for Myhre - 24 & 25 September 2022

We’re already working on ideas for the Move for Myhre weekend, two days dedicated to raising awareness and funds of Myhre syndrome.

We launched last year and saw so many fantastic events happening all over the world. Before we know it, September will be here so if you’ve got your eye on a challenge, or want to help spread the word about Myhre, start having a think about what you’d like to do this September.

At MSF the team has ideas for a cake sale and bike-a-thon and this year we’ll be bringing you some new and exciting content to help spread the word. Stay tuned!

YouTube Playlists - Your Guide