Summer Seminars - Registration is Open!

Thursday May 26, 2022

Summer Seminars - July 2022

We’re excited that registration for our Summer Seminars is open. This year we’re not charging a fee but encouraging attendees to donate. If you donate $50 or more, you will receive a Gold Supporters Badge that will feature on our website and social channels.

Each Saturday in July, new content will be available with multi-language captions. New topics include gastroenterology, endocrinology, psychiatry and brain and spine imaging.

Don’t forget you don’t need to attend the event to support us. Donate today and you will be helping events like this happen, as well as contributing to the MSF research fund.

SEE THE SPEAKER LIST HERE

Evidence-Based Guidelines for Myhre Syndrome

There are often so many questions for a rare syndrome community, especially when it comes to treatment plans. A gold standard approach is to produce Evidence-Based Guidelines but what information is needed and what is the process?

Directory of Myhre Doctors

Do you have a doctor who is working with you to learn more about Myhre? Who is supportive and listens to your needs? If so, we'd love for them to join the MSF Directory of Myhre Doctors & Clinicians.

By joining the directory, they are helping us grow a wider network of global Myhre specialists. Next time you're visiting, why not let them know about the directory. You can download or print the consent form below and either you, or your doctor, can send it back to us at myhre@myhresyndrome.org

Thank you for bringing the Myhre community closer together.

CONSENT FORM

VIEW THE DIRECTORY HERE

At the beginning of the year we asked for volunteers, and we have been overwhelmed with the support. Nine volunteers from the UK and US now sit across our Scientific, Patient Advocacy, Fundraising and Marketing teams. Welcome to MSF and thank you, with your help we will be able to support the Myhre community with many more initiatives.