Your support will change lives
We need to learn more about Myhre Syndrome so we can stop the progression of this ultra-rare condition.
Your donation will help us fund research, raise awareness and give hope to the Myhre community - we are truly thankful.
Donate Today
You can make a quick donation here, or consider creating a fundraiser.
One of the best ways to help spread the word about Myhre is to fundraise via your network of friends and family as it opens up a whole new audience who might not know about Myhre.
Support our community
The Myhre community spans the world. There are many different patient experiences and often there is a lack of knowledge. Help us provide educational resources, events and support for our community, wherever they live.
Find out how you can support our different community programs.
In-person Conference July 2024
Can you help us host the first-ever Myhre Syndrome Foundation In-person Conference?
From sponsoring our Art Room, helping families with our Travel Fund, or becoming the host of our celebratory dinner.
Click the link to see our proposal!
Does your company match fund?
The search box below will show whether your company will match your donation as well as provide all the forms, guidelines and instructions you need. Your support funds research, education, advocacy to help people living with Myhre Syndrome live their best lives. See if your employer will match your donation!
Naming a charity as a beneficiary
Did you know you can leave a portion of your estate as a gift to charity or a bequest? Things to know…
Charitable Bequests
They are a great way to leave a legacy. If you’ve spent your entire life trying to make an impact on the world, leaving money to charity is yet another way to continue to give, even after you pass away. Establishing a charity as a Beneficiary ensures your impact will continue.
In some cases, there might be more beneficial ways than bequests to support charitable organizations. Planned-giving professionals are extremely knowledgeable in ways to maximize your impact, both during your lifetime and after death. They can be fantastic resources that might allow you to do more than you’d have been able to with a simple Charitable Bequest.
Charitable Trusts
If you have high-valued assets, you have even more options to give back. Charitable Trusts are one such option for larger donations. They can be a way to support areas in need, while also providing assistance to other Beneficiaries through a stream of income and a pool of assets that can be used for charitable purposes.
Myhre Syndrome Foundation is an IRS accredited 501(c)(3) non-profit charitable organization. All donations are tax-deductible. EIN 83-4086943. We are committed to ensuring donors have the highest level of confidence when making contributions to the foundation. Myhre Syndrome Foundation maintains minimum operating expenses. The Board of Directors and Professional Advisory Board are committed volunteers. No board member receives compensation.
Please email info@myhresyndrome.org to request financials.