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Join us monthly at
US -5.00 PM PST, 7.00 PM CST, and 8.00 PM EST.
China 8.00 AM and Australia 11:00 AM AEDT (Sunday) for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/97689339828
Click on the image to the left to see all the Saturday dates - we look forward to meeting you!
Join us each month at…
US - 6.00 AM PST, 8.00 AM CST, 9.00 AM EST.
Europe - 2.00 PM GMT, 3.00 PM CET, 4.00 PM EET for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/96426736955
Click on the image to the left to see all the Sunday dates - we look forward to meeting you!
Join us monthly as we dive into the innovative tools and strategies driving treatment and cure discovery for Myhre syndrome.
Whether you're a patient or caregiver, we invite you to join the conversation and bring your questions about Myhre syndrome research.
Join us on the following Saturdays at 8am PST, 10am CST, 11am EST, 4pm GMT, 5pm GMT+1.
September 20
October 18
November 22
Use this Zoom Link
https://zoom.us/j/96045408396
Dr Mo is Assistant Professor at Emory University School of Medicine in the Department of Pharmacology and Chemical Biology.
Dr. Mo's research is to understand the molecular basis underlying tumor initiation, progression and drug resistance, and to bridge the gap between vast cancer genomic dataset and unmet clinical need. His focus on SMAD4 is providing mechanistic insight in context-dependent manner to understand how SMAD4 loss-of-function mutation drives tumorigenesis but also now in SMAD4 gain of function in Myhre syndrome development.
8AM PST
Eva Vanbelleghem is a PhD student and clinical geneticist in training. Her research, under the supervision of Bert Callewaert, is fully dedicated to Myhre syndrome. She studies its disease mechanisms using zebrafish models, cell cultures, and 3D culture systems. Her long-term goal is to bridge clinical practice and research to advance our understanding of Myhre syndrome, with the aim of contributing to the development of targeted therapies and improved patient care.
8AM PST
https://zoom.us/j/98495514486
We are excited to announce that the next Myhre Syndrome Foundation Family & Patient Conference will take place in London on July 25th & 26th, 2026! This special event will bring together individuals and families affected by Myhre syndrome, clinicians, researchers, and advocates from around the world. Attendees will have the opportunity to share experiences, hear the latest research updates, and connect with the global Myhre community.
Interested in attending?
We’d love to hear from you! Please register your interest here.
We are excited to host the first-ever in-person Myhre syndrome conference.
Click here to find out all the details and how to book your place.
Join us each month for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/91578674398
Click on the image to the left to see all the Sunday dates - we look forward to meeting you!
Join us each month for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/98127758091
Click on the image to the left to see all the Saturday dates - we look forward to meeting you!
We are back with our popular virtual conference later this year. You can expect a new format including a Q&A panel with Myhre doctors. You’ll also see new topics including how to build social connections, research updates, and nutrition – to name just a few.
See the full agenda here
Tickets are available here - https://give.classy.org/msfvirtual23
This year we’re not charging a fee but encouraging attendees to make a donation to help Myhre Syndrome Foundation advance research.
If you make a donation of $50 or more you will receive a Gold Supporters Badge that will feature on our website and social channels.
If you’re unable to make a donation at this time, please register here.
After you have registered, on 1 July you will receive an access code and further instructions.
About Summer Seminars
This July you can look forward to a month of content from our Myhre experts as they update you on the latest research and clinical findings on Myhre syndrome.
We have brand new topics including endocrine, brain & spine imaging, dermatology and psychiatry.
Click here for the full list of speakers.
All content is available on demand and with multi-language captions.
We’re excited to have launched the very first weekend dedicated to Myhre Syndrome awareness and fundraising. Each year at the end of September we’ll be coming together as a community to spread the word and unite as an international rare community.
Click the image for more details…
Don’t worry if you missed the first Myhre Syndrome Virtual Conference, it’s not too late to join us - register now to view all recorded talks until 11 August, 2021. Just visit https://myhre2021.heysummit.com
Click the image for more details on the conference.
