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Join us each month at 5pm PST, 7pm CST and 8pm EST and 11:00 AM AEDT (Sunday’s) for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/97689339828
Click on the image to the left to see all the Saturday dates - we look forward to meeting you!
Join us each month at 6am PST, 8am CST, 9am EST, 2pm GMT for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/96426736955
Click on the image to the left to see all the Sunday dates - we look forward to meeting you!
Join us monthly as we dive into the innovative tools and strategies driving treatment and cure discovery for Myhre syndrome.
Whether you're a patient or caregiver, we invite you to join the conversation and bring your questions about Myhre syndrome research.
Join us on the following Saturdays at 7am PST, 9am CST, 10am EST, 3pm GMT, 4pm GMT+1.
Use this Zoom Link https://zoom.us/j/91364271873 for the following dates.
January 25
February 22
NO MEETING IN March & April
May meeting moved to May 3
Use this Zoom Link https://zoom.us/j/96068805828 for the following dates.
June 21
July 19
Use this Zoom Link https://zoom.us/j/97772674523 for the following date.
August 23
We are excited to announce that the next Myhre Syndrome Foundation Family & Patient Conference will take place in London on July 25th & 26th, 2026! This special event will bring together individuals and families affected by Myhre syndrome, clinicians, researchers, and advocates from around the world. Attendees will have the opportunity to share experiences, hear the latest research updates, and connect with the global Myhre community.
Interested in attending?
We’d love to hear from you! Please register your interest here.
We are excited to host the first-ever in-person Myhre syndrome conference.
Click here to find out all the details and how to book your place.
Join us each month for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/91578674398
Click on the image to the left to see all the Sunday dates - we look forward to meeting you!
Join us each month for informal chats and to meet other members of the Myhre community.
https://zoom.us/j/98127758091
Click on the image to the left to see all the Saturday dates - we look forward to meeting you!
We are back with our popular virtual conference later this year. You can expect a new format including a Q&A panel with Myhre doctors. You’ll also see new topics including how to build social connections, research updates, and nutrition – to name just a few.
See the full agenda here
Tickets are available here - https://give.classy.org/msfvirtual23
This year we’re not charging a fee but encouraging attendees to make a donation to help Myhre Syndrome Foundation advance research.
If you make a donation of $50 or more you will receive a Gold Supporters Badge that will feature on our website and social channels.
If you’re unable to make a donation at this time, please register here.
After you have registered, on 1 July you will receive an access code and further instructions.
About Summer Seminars
This July you can look forward to a month of content from our Myhre experts as they update you on the latest research and clinical findings on Myhre syndrome.
We have brand new topics including endocrine, brain & spine imaging, dermatology and psychiatry.
Click here for the full list of speakers.
All content is available on demand and with multi-language captions.
We’re excited to have launched the very first weekend dedicated to Myhre Syndrome awareness and fundraising. Each year at the end of September we’ll be coming together as a community to spread the word and unite as an international rare community.
Click the image for more details…
Don’t worry if you missed the first Myhre Syndrome Virtual Conference, it’s not too late to join us - register now to view all recorded talks until 11 August, 2021. Just visit https://myhre2021.heysummit.com
Click the image for more details on the conference.
