We are pleased to announce that Christiana Thomas (right) has been appointed as our next Executive Director, succeeding Kate Wears, who has led the organization through a pivotal period of growth and impact. Kate’s leadership has elevated our research strategy, patient engagement, and advocacy presence, laying a strong foundation for the Foundation’s next chapter.

Christiana joins the Foundation with over a decade of experience leading strategic communications and advancement initiatives across nonprofit and corporate sectors. She has built a career around crafting high-impact campaigns, strengthening stakeholder relationships, and securing significant philanthropic and institutional support. With a focus on translating complex challenges into actionable strategies, she has helped mission-driven organizations expand their visibility and achieve measurable outcomes.

Christiana said:

“I’m honored to step into the role of Executive Director for the Myhre Syndrome Foundation. Throughout my career, I’ve had the privilege of leading communications and advancement efforts that connect mission with impact. I bring to this role a deep respect for the families and researchers dedicated to understanding and treating Myhre syndrome. While I am new to this specific community, I am fully committed to strengthening the Foundation’s capacity, visibility, and sustainability. I look forward to working with the board and broader community to carry forward strategic priorities and amplify the hope, resilience, and collaboration at the heart of the Myhre mission.”

We’re excited to welcome Christina, and you’ll get to meet her soon at one of the virtual community events.