There are numerous avenues to get involved in research and provide data, learn more here.

Get to know Maggie Brand, the new Clinical Research Assistant at the Myhre Clinic at MGH.

This is a short guide for educators on how they can support children and young adults with Myhre syndrome. We encourage you to send this link or print this article to give to them.

Dr Angela Lin, co-director of the Myhre Syndrome Clinic at Massachusetts Hospital in Boston, provided a genetics refresher.

Myhre Syndrome Foundation (MSF) is committed to the advancement of Myhre syndrome clinics across the world. Clinics provide vital on-the-ground community support and contribute to ongoing global research.

Dr. Angela Lin and Dr. Mark Lindsay are happy to share this photo showing members of the MGH Myhre syndrome research team at the Cardiovascular Research Center Retreat on November 11, 2022.

We’re excited to announce some leadership team changes at MSF. Kate Wears, moves into an Executive Director role, with overall strategic and operational responsibility for the foundation including programs, expansion, and execution of our mission.

Myhre syndrome is in the headlines, and thanks to Dr Gerarda Cappuccio, who has been selected as the co-recipient of the prestigious 2022 John M. Opitz Young Investigator Award by the American Journal of Medical Genetics.