Move for Myhre 2026 - Virtual Community Conference - Saturday, 26 September 2026
This year's virtual conference is extra special. It falls on our 5th Annual Move for Myhre fundraising weekend!
Registering for the conference automatically creates a personal fundraising page for you. The event is free to attend, but if you can, we'd love you to share your page and help us make history.
We're aiming to raise over $26,000 - our biggest year yet - and it's no coincidence that's the date we're all coming together: September 26th.
We're suggesting a target of $250 per family. Whether it's a bake sale, a sponsored walk, or simply sharing the link with friends and family, every donation helps.
You only need one conference pass per family, and we’ll send you the Zoom link a few days before the event.
Let's make this milestone year one to remember!
Agenda
All times Eastern Standard Time
Welcome & Updates from ED
20 mins
Speaker details coming soonFireside Chat: Clinical Research
50 mins · 35 mins conversation + 15 mins live Q&A
Speaker details coming soonGene Editing Explanation
15 mins
Speaker details coming soonHow to Participate in Research Today
10 mins
Presented by the MSF President
Speaker details coming soonBreak
10 mins
Clinician Ask Me Anything
50 mins
Speaker details coming soonEmergency Room 101
40 mins
Speaker details coming soonAnticipatory Grief
45 mins
Speaker details coming soonLunch Break
20 mins
Adults Living with Myhre
10 mins
Speaker details coming soonBreakout Sessions
35 mins
Pre-assigned and selected at Registration
Speaker details coming soonCelebrations & Achievements
5–10 mins
Speaker details coming soonClose
10 mins
Speaker details coming soonEnd
