Move for Myhre 2026 - Virtual Community Conference - Saturday, 26 September 2026

Katie raising awareness and funds in her community for Move for Myhre!

This year's 5th Annual Move for Myhre fundraising weekend is extra special - we're holding our next Virtual Community Conference on Saturday, September 26.

Event highlights include:

  • Ask Me Anything with Dr. Angela Lin & Dr. Bert Callewaert

  • Anticipatory Grief workshop with expert Allison Breininger

  • Emergency 101 with Dr. Shaine Morris (Cardiologist) & Dr. Edith Neptune (Pulmonologist)

Registering for the conference automatically creates a personal fundraising page for you. The event is free to attend, but if you can, we'd love it if you could share your page.

We're aiming to raise over $26,000, which would be our biggest year yet, and are suggesting a target of $250 per family. Whether it's a bake sale, a sponsored walk, or simply sharing the link with friends and family, every donation helps.

You only need one conference pass per family, and we'll send you the Zoom link a few days before the event.

Any questions? Email us at events@myhresyndrome.org

Virtual Community Conference Agenda

All times indicated are Eastern Standard Time

9:00am

Welcome & Updates from Eexcutive Director, Christiana Thomas

20 mins

Speaker details coming soon
9:20am

Fireside Chat: Clinical Research

50 mins  ยท  35 mins conversation + 15 mins live Q&A

Speaker details coming soon
10:10am

Gene Editing Explanation

15 mins

Speaker details coming soon
10:25am

How to Participate in Research Today

10 mins

Presented by the MSF President

Speaker details coming soon
10:35am

Break

10 mins

10:40am

Clinician Ask Me Anything

50 mins

Speaker details coming soon
11:30am

Emergency Room 101

40 mins

Speaker details coming soon
12:10pm

Anticipatory Grief

45 mins

Speaker details coming soon
12:55pm

Lunch Break

20 mins

1:15pm

Adults Living with Myhre

10 mins

Speaker details coming soon
1:35pm

Breakout Sessions

35 mins

Pre-assigned and selected at Registration

Speaker details coming soon
2:10pm

Celebrations & Achievements

5โ€“10 mins

Speaker details coming soon
2:15pm

Close

10 mins

Speaker details coming soon
2:30pm

End