Move for Myhre 2026 - Virtual Community Conference - Saturday, 26 September 2026

This year's virtual conference is extra special. It falls on our 5th Annual Move for Myhre fundraising weekend!

Registering for the conference automatically creates a personal fundraising page for you. The event is free to attend, but if you can, we'd love you to share your page and help us make history. 

We're aiming to raise over $26,000 - our biggest year yet - and it's no coincidence that's the date we're all coming together: September 26th.

We're suggesting a target of $250 per family. Whether it's a bake sale, a sponsored walk, or simply sharing the link with friends and family, every donation helps.

You only need one conference pass per family, and we’ll send you the Zoom link a few days before the event.

Let's make this milestone year one to remember!

Agenda

All times Eastern Standard Time

9:00am

Welcome & Updates from ED

20 mins

Speaker details coming soon
9:20am

Fireside Chat: Clinical Research

50 mins  ·  35 mins conversation + 15 mins live Q&A

Speaker details coming soon
10:10am

Gene Editing Explanation

15 mins

Speaker details coming soon
10:25am

How to Participate in Research Today

10 mins

Presented by the MSF President

Speaker details coming soon
10:35am

Break

10 mins

10:40am

Clinician Ask Me Anything

50 mins

Speaker details coming soon
11:30am

Emergency Room 101

40 mins

Speaker details coming soon
12:10pm

Anticipatory Grief

45 mins

Speaker details coming soon
12:55pm

Lunch Break

20 mins

1:15pm

Adults Living with Myhre

10 mins

Speaker details coming soon
1:35pm

Breakout Sessions

35 mins

Pre-assigned and selected at Registration

Speaker details coming soon
2:10pm

Celebrations & Achievements

5–10 mins

Speaker details coming soon
2:15pm

Close

10 mins

Speaker details coming soon
2:30pm

End