Move for Myhre 2026 - Virtual Community Conference - Saturday, 26 September 2026
Katie raising awareness and funds in her community for Move for Myhre!
This year's 5th Annual Move for Myhre fundraising weekend is extra special - we're holding our next Virtual Community Conference on Saturday, September 26.
Event highlights include:
Ask Me Anything with Dr. Angela Lin & Dr. Bert Callewaert
Anticipatory Grief workshop with expert Allison Breininger
Emergency 101 with Dr. Shaine Morris (Cardiologist) & Dr. Edith Neptune (Pulmonologist)
Registering for the conference automatically creates a personal fundraising page for you. The event is free to attend, but if you can, we'd love it if you could share your page.
We're aiming to raise over $26,000, which would be our biggest year yet, and are suggesting a target of $250 per family. Whether it's a bake sale, a sponsored walk, or simply sharing the link with friends and family, every donation helps.
You only need one conference pass per family, and we'll send you the Zoom link a few days before the event.
Any questions? Email us at events@myhresyndrome.org
Virtual Community Conference Agenda
All times indicated are Eastern Standard Time
Welcome & Updates from Eexcutive Director, Christiana Thomas
20 mins
Speaker details coming soonFireside Chat: Clinical Research
50 mins ยท 35 mins conversation + 15 mins live Q&A
Speaker details coming soonGene Editing Explanation
15 mins
Speaker details coming soonHow to Participate in Research Today
10 mins
Presented by the MSF President
Speaker details coming soonBreak
10 mins
Clinician Ask Me Anything
50 mins
Speaker details coming soonEmergency Room 101
40 mins
Speaker details coming soonAnticipatory Grief
45 mins
Speaker details coming soonLunch Break
20 mins
Adults Living with Myhre
10 mins
Speaker details coming soonBreakout Sessions
35 mins
Pre-assigned and selected at Registration
Speaker details coming soonCelebrations & Achievements
5โ10 mins
Speaker details coming soonClose
10 mins
Speaker details coming soonEnd
