Big ideas for a rare world
The Possibility Club is a community helping people living with Myhre syndrome, an extremely rare genetic condition. 2026 is our founding year.
Every gift, of any size, makes you a member. The Myhre Syndrome Foundation is a 501(c)(3) and your donation is tax deductible within the guidelines of U.S. law.
You don’t have to know someone with Myhre syndrome to make a difference.
You just have to believe everyone deserves better care today, with a future full of possibilities.
The Possibility Club brings together families, friends, clinicians, and supporters who believe in big ideas for a rare world.
Every gift, of any size, makes you a founding member.
Join the clubMember toolkit
Show you’re part of the club and help us find more members. Download the badge and graphics below and share them wherever your people are.
Proud Member badge
PNG with a transparent background, for profiles, posts and email signatures.
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1080 × 1920, for Instagram and Facebook stories. Add a link sticker to the donation page.
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600 pixels wide, ready to add under your name in every email you send.
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About our mission
The Myhre Syndrome Foundation unites and supports patients and families through community, education, and shared knowledge.
We fund research and connect clinicians and scientists across borders to accelerate the science toward treatments, with patients and families at the center of everything we do.
Become a founding memberQuestions about your gift? Email kwears@myhresyndrome.org.