Michelle Smith

Board of Directors | Advocate

Michelle Smith is a devoted wife, mother of five, and follower of Jesus who brings deep compassion, perspective, and faith to her role as an advocate for families affected by rare diseases. After earning her master’s degree in Occupational Therapy from Spalding University and working for several years in predomiately pediatric therapy settings, Michelle chose to step away from her career to stay home full-time with her children—a calling she has embraced wholeheartedly.

Her fourth born, Mila, was diagnosed with Myhre Syndrome, and this journey has deepened Michelle’s passion for walking alongside other families in the rare disease community. She also volunteers in the marriage and special needs ministries at Watermark Community Church in Dallas, where she and her husband serve together.

Whether supporting her family, organizing community efforts, or encouraging other parents facing similar challenges, Michelle leads with empathy, perseverance, and the unshakable hope she finds in Christ. 

msmith@myhresyndrome.org