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Myhre Syndrome Foundation

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Myhre Syndrome Foundation

  • What is Myhre?
  • News
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    • Family Resources
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    • London 2026
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Featured
Dr. Sofia Douzgou Houge.jpg
Jun 14, 2021
Research Summary: Constipation
Jun 14, 2021

Dr Sofia Douzgou details the prevelance of constipation as well as the challenges in determining a cause.

Jun 14, 2021
What was the first report about Myhre Syndrome?
May 11, 2021
What was the first report about Myhre Syndrome?
May 11, 2021

Dr Matt Thompson and Dr Angela Lin talk us through the very first research paper on Myhre Syndrome published in 1981, giving historical context and original observations.

May 11, 2021
Cappuccio.jpg
May 11, 2021
The people behind the research: Losartan
May 11, 2021

Gerarda Cappuccio, MD, PhD and Nicola Brunetti-Pierri, MD discuss the initial findings from a research study into the effectiveness of Losartan to treat some of the symptoms of Myhre Syndrome.

May 11, 2021

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